Sickle Cell in Africa

• Sickle Cell Information Center Home Page
  http://www.scinfo.org/
  The mission of this site run by the Emory University School of Medicine, is to provide sickle cell patient and professional education, news, research updates and world wide sickle cell resources. There are links to resources for health care providers, health care administrators, background information on the disease, pharmaceutical clinical research and a link to world wide resources that include clinics in Africa.
• Nigerian Sickle Cell Association
  http://www.godianism.org/Nigerian%20Sickle%20Cell%20Association.htm
  The Nigerian Sickle Cell Association was formally inaugurated in 1992 in Umuahia, Abia State of Nigeria by the Godian religion. The nucleus of the association at this time consists of some medical doctors and many sickle cell patients.The main objectives of this association are to promote and to protect the material, mental and social welfare of sickle cell disease afflicted individuals,to educate and enlighten the public on sickle cell disease in its entire ramification; its signs and symptoms and ways of contracting it and the ways by which it can be prevented.
• Sickle Cell Foundation Nigeria
  http://www.sicklecellfoundation.com/
  Sickle Cell Foundation Nigeria is a Nigerian non-profit organization based in Lagos that aims to optimally enhance the quality of life of individuals with sickle cell disorder and reducing, as much as possible, the burden of the disorder in the community.
• The Comprehensive Sickle Cell Center, CHOP
  http://www.chop.edu/consumer/jsp/division/generic.jsp?id=70459
  The Comprehensive Sickle Cell Center at The Children's Hospital of Philadelphia is one of 10 such centers in the United States funded by the National Heart, Lung and Blood Institute of the National Institutes of Health. This Center serves more than 600 patients from the Delaware Valley and provides a focus for laboratory, clinical and educational research.
• Information Center for Sickle Cell and Thalassemic Disorders, Harvard
  http://sickle.bwh.harvard.edu/
  Information Center for Sickle Cell and Thalassemic Disorders provides this site as a free service to the biomedical community. The goal is to provide a source of current information on sickle cell disease, thalassemia, and disorders of iron metabolism. The site includes overviews of basic and clinical research, management, and new developments in the fields.
• The Geography of Sickle Cell Disease: Opportunities for Understanding its Diversity, (Article)
  http://www.kfshrc.edu.sa/annals/143/rev9239.html
  This article was written by Graham R. Serjeant, MD, FRCP, University of the West Indies, Kingston 7, Jamaica, West Indies.
• Hemoglobinopathies, University of Rochester
  http://www.urmc.rochester.edu/Genetics/hemobroc.htm
  This site provides a wealth of information on hemoglobin disorders. Brochures exist in Adobe PDF file format as well as HTML.
• Sickle Cell Disease in the United States of America and Africa
  http://www.hematology.org/education/hema99/ohene-frempong.pdf
  An article by Dr. Kwaku Ohene-Frempong.
• Sickle Cell Society
  http://www.sicklecellsociety.org/
  The Sickle Cell Society was formed in 1979 by a group of patients, parents and health professionals who were all concerned about the lack of understanding and the inadequacy of treatment for sufferers of sickle cell disorders. Site provides disease information, advice for therapy and links to current research.
• Sickle Cell Disease Association of America, Inc. (SCDAA)
  http://sicklecelldisease.org/
  The Sickle Cell Disease Association of America, Inc. (SCDAA)founded in 1971 to provide an effective coordinated community-based approach to developing and implementing strategies to resolve issues surrounding sickle cell disease. Site provides links to information, research articles and support groups.
• NIH- What is Sickle Cell Anemia?
  http://www.nhlbi.nih.gov/health/dci/Diseases/Sca/SCA_WhatIs.html
  Web-based pamphlet with information about the disease and links to current research.
• Hertz Nazaire- Sickle Cell Patient Information
  http://members.tripod.com/%7Enazaire1/aqjumpscd.html
  A comprehensive, patient run sickle cell information site. The information is presented from the patient's point of view. There are discussion boards, links, and art.